Digital technologies and improved health data provide promising opportunities for innovation and acceleration of progress towards the health-related SDGs and for building more resilient systems for health. But 3.5 billion people still lack access to the internet and the opportunities it provides, highlighting the importance of programming, policy and legal frameworks that facilitate equitable access, protect privacy, reduce disinformation and narrow the digital divide.
The achievement of universal health coverage of quality, accessible and affordable health services is primarily dependent on well-functioning and robust health systems of a country. In recent years, outbreaks of Ebola and the Covid-19 pandemic have exposed and stressed weaknesses and gaps in health systems thereby increasing inequities in health and development worldwide.
UNDP support to countries in building inclusive, ethical and sustainable digital societies is guided by its Strategic Plan 2022 – 2025 and Digital Strategy 2022 – 2025, which reiterate its commitment to support digital transitions using a rights-based approach. Central to UNDP’s mission are inclusion and the protection of human rights. In its pursuit of digital development, UNDP continues to advocate for and implement ‘intentionally inclusive’ methodologies that prioritize people-centered design.
As digital technology rapidly evolves, UNDP’s approach to digital remains rooted in clear principles based on experience and international frameworks that put people and planet first. UNDP advocates for open digital standards to unlock scale, reusability and interoperability. Leveraging digital public goods can unlock transformative solutions and digital infrastructures to enable a more equitable and transparent future, with a strong emphasis on protecting rights and preventing misuse.
In Ghana, UNDP is working with the Food and Drugs Authority with the roll-out of the Med Safety mobile app to monitor drug safety designed to encourage reporting of harmful side effects of health products, including medicines and vaccines, by consumers, patients and health care professionals. In Burundi, Chad, Djibouti and Guinea-Bissau, the UNDP-Global Fund partnership in collaboration with governments have rolled out and scaled mobile technology to digitize HIV, tuberculosis and malaria data to map, track, prevent and treat health outbreaks in real-time. The national tuberculosis programme in Moldova, in partnership with UNDP, is scaling up a mobile application which allows tuberculosis patients to video record themselves taking medicines at a time of the day and location convenient for them.
While the potential of data and digital transformation for health is widely recognized, the ‘digital divide’ across and within countries, particularly for the poor and most marginalized, threatens to reinforce exclusion. Data privacy protection is crucial in a world where more health data is being generated – and potentially commodified – every day. Already, millions of existing digital identities are vulnerable to fraud and public exposure of personal information because they are stored in unsecured systems. In addition, billions of people do not have a digital identity and are not represented in the electronic data systems used to augment service delivery and monitor and collect data. Currently, the ownership and use of many forms of data are governed only by default norms and rules, and many jurisdictions at many levels are working to ensure that advances in innovation are accompanied by data policies that protect users.
Various tools can help address the challenges and risks associated with the adoption of data and digital health solutions. This includes the health technology assessment (HTA), a multi-disciplinary process that evaluates the value of health technology at different points in its lifecycle, including the technology’s properties, effects and impacts. It aims to inform policymakers and influence decision-making in health care, with a focus on how best to allocate funding for health programmes and technologies. Components of an HTA include validation of technical aspects (i.e., accuracy of the product or system), clinical considerations (i.e. contribution towards improving or maintaining a specific health condition) and systems compatibility (i.e. connection and/or integration into health service provision and health systems, including medical records). HTAs can be applied to different types of interventions, such as piloting tests, medicines, vaccines, procedures and programmes.
Governance and policy – Many countries do not have any well-defined policies and strategic framework on digital health or more broadly on digital technologies and data management. There is an urgent need for countries to build an enabling legal environment and have guidelines on citizen data protection, open standards, interoperability of digital systems, AI, standards on electronic health records and laws on data privacy.
Regulating digital space – This is a major governance challenge as most of the innovations in the digital sector are taking place in the private sector while government regulatory systems are lagging behind in catching up on the latest trends. According to a survey done by the Global Digital Health Platform on existing digital policy frameworks, only a very small percentage of developers took approval from regulators prior to designing digital health tools.
Digital ecosystems are fragmented – Most of the technology development takes place in silos in the public and private sectors which often precludes the emergence good quality low-cost tools for healthcare. Most of the digital tools do not progress beyond the pilot phase in the absence of an integrated and well-coordinated digital health ecosystem that underpins national health policies. There is unequal levels of availability, affordability and access to digital tools and technologies, particularly in LMICs, leading to a digital divide.
Weak supporting infrastructure – In several parts of the world, e-health infrastructure is weak and unable to support the scale of digital health. Most of this infrastructure is not interoperable or connected, particularly the health information systems. Low internet penetration and speeds are critical limitations impacting people from benefitting despite increasing availability of smartphones.
Digital health technologies have impacted privacy in various ways. More people have access to patient information, including medical caregivers, researchers, and administrators in the health care system and, in many cases, employers and government agencies outside it. Patient information is more accessible because it is increasingly stored in digital form and so it can be transmitted more easily than in paper form. Patient information is held for very long periods of time, and the longer it remains in existence, the greater the opportunities for abuse. Privacy concerns are enhanced by the fact that the collected medical records provide a storehouse of information that can be used in a variety of ways other than those intended when the information was first collected. These records can also be used for the marketing of particular drugs, or for the denial of medical health insurance coverage.
Examples of risks associated with increased collection and digitalization of health data include: